Associate member – why I joined the SMND RAG

November 2017

In 2012 I was contacted by the Alumni office of Sheffield University as I was a student there from 1966 to 1969. Whilst speaking to the student representative of the Alumni office, I mentioned that, whilst studying at Sheffield, I met my late husband who was also a student at Sheffield. He died of Motor Neurone Disease in 2011. The student arranged for me to visit the university taking in an open day at SITraN. I was extremely interested to visit SITraN and very impressed by the excellent research being carried out.

Whilst at the open day, I became an associate member of the group. I have been very interested in developments in research and feel that, if required, I am able to comment on the needs and experiences of patient and carer. I am also happy to proof read any documents.

I think my experience is as expected and I do hope to be able to visit SITraN again.

I am very pleased that SITraN exists. MND is a terrible disease.