Can you help researchers understand patients’ and carers’ priorities?

The aims of the Research Advisory Group are to:

• Enable the perspectives of patients and carers to be included in research proposals

• Provide knowledge from each member’s experiences of MND

• Identify and prioritise research topics from the patients’ perspective

• Improve recruitment to research studies

• Help identify improved treatments from research results

• Give patients and carers a more authoritative voice

• Help build public credibility and trust in clinical research

• Improve the input from patients and carers to research projects

• Identify any barriers to patient’s effective involvement in research

• Comment on “Patient Information and Research Results Sheets”

• Help write lay summaries for research proposals

• Raise public awareness of MND research

If becoming a member interests you and you would like to find out more about the group please email Annette Taylor at smndrag@sheffield.ac.uk.

You would be welcome to attend a meeting and visit SITraN.