Can you help researchers understand patients’ and carers’ priorities?

November 2021

The aims of the Research Advisory Group are to:

  • Enable the perspectives of patients and carers to be included in research proposals

  • Provide knowledge from each member’s experiences of MND

  • Identify and prioritise research topics from the patients’ perspective

  • Improve recruitment to research studies

  • Help identify improved treatments from research results

  • Give patients and carers a more authoritative voice

  • Help build public credibility and trust in clinical research

  • Improve the input from patients and carers to research projects

  • Identify any barriers to patient’s effective involvement in research

  • Comment on “Patient Information and Research Results Sheets”

  • Help write lay summaries for research proposals

  • Raise public awareness of MND research

If becoming a member interests you and you would like to find out more about the group please email Annette Taylor at

You would be welcome to attend a meeting and visit SITraN.