Can you help researchers understand patients’ and carers’ priorities?
The aims of the Research Advisory Group are to:
Enable the perspectives of patients and carers to be included in research proposals
Provide knowledge from each member’s experiences of MND
Identify and prioritise research topics from the patients’ perspective
Improve recruitment to research studies
Help identify improved treatments from research results
Give patients and carers a more authoritative voice
Help build public credibility and trust in clinical research
Improve the input from patients and carers to research projects
Identify any barriers to patient’s effective involvement in research
Comment on “Patient Information and Research Results Sheets”
Help write lay summaries for research proposals
Raise public awareness of MND research
If becoming a member interests you and you would like to find out more about the group please email Annette Taylor at firstname.lastname@example.org.
You would be welcome to attend a meeting and visit SITraN.